Google
Trusted Resources: News & Events
Latest announcements and gatherings
Q&A With Regina Hartfield, New CEO of the SCDAA
Regina Hartfield is set to become the president and CEO of the Sickle Cell Disease Association of America, Inc. (SCDAA) on January 14, 2022.
In a Q&A-style interview with Sickle Cell Disease News, Hartfield, 62, explained where she wanted to take the organization and its various member groups. She also highlighted the importance of listening to the community and how to better engage patients in clinical trials, which historically have low minority enrollment.
Sickle Cell Disease News (SCDN): It seems like you’ve done a lot of community outreach in different organizations that you’ve been a part of. Are you planning on expanding the organization’s work in that area? And if you are, how are you planning on going about that?
Regina Hartfield (RH): The work that we’d like to do is to currently build on what we have right now. We have 53 member organizations that are part of the SCDAA partnership on a national basis. And so our footprint’s pretty broad, and one of the most important things that I definitely want us to do is to continue to build on that.
The other thing that I think will be exciting is to develop some different types of programming to augment the existing programs that we have in place for fundraising and advocacy. So, we’ll be working on developing those. Stay tuned.
SCDN: What are you hearing from those 53 member organizations? What are they saying are the biggest issues for them and how are you planning to address those?
+myBinderRelated Content
-
WNY Girl Gets First Pediatric Bone Marrow Transplant for Sickle Cell in BuffaloKayla Rushing is the first pediatric pat...
-
Fredericksburg Area Sickle Cell AssociationThe Fredericksburg Area Sickle Cell Asso...
-
Sickle Cell Disease: Treatments – PAINWeekhttps://www.youtube.com/watch?v=llqCdRNK...
-
How can Implementation Science Frameworks Help Implement new Born ScreeningHow can Implementation science framework...
-
What do we have to do?In college I raised $52 for cancer. I ...
-
Isaac OkelloIsaac Okello is a Sickle Cell Advocate f...
-
SCDAI’S 19th Annual Golf OutingIn 2021, we are celebrating 50 years as ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.